Monday, February 23, 2015

The Eye of the Hurricane

So my appointment free week ended up with a dentist appointment. :)  I called and they happened to have an opening with my hygienist the next day.  I've gone through several dentists, but Michelle has cleaned my teeth since my first dentist visit. :)  She was so upset about my cancer.  We had a good talk about it. (Before she cleaned my teeth!)  It is so great to have prayers and support from so many places.

I had a great week at school, but it completely wiped me out.  I slept until 3 on Saturday, and napped on Sunday from about 2 until 7.  I missed Bible Study.  I hate losing my family/friend time to this weariness.  I'm so glad to be teaching again, but I am definitely paying for it.

 Luke's basketball season ends tonight at Springville.  Having that over will really help our evenings.  I've really enjoyed watching him play, though.  He has started to really enjoy playing, and it shows.  He's scored 10 points so far this season, and he's had a few steals and some good rebounds.  I'm really, really proud of him.  I hope he'll play in high school.  I think he could eventually be pretty good if he keeps at it.

My mom found out late last week that she is the BRCA-1 carrier.  She will see my oncologist, Dr. Buntinas, who will keep an eye on her.  It's pretty amazing that she made it to 66 and hasn't had any cancer.  She feels guilty that I had to be the one to discover it and deal with cancer.  I told her God's plan is perfect and He worked it out exactly how He wanted it.  He's provided everything we need, and although it has been such a tough road, it's brought our family closer to each other and closer to the Lord.  What could be better than that?

We head up to Mayo tomorrow for 4 appointments on Wednesday.  The most important is with the radiation oncologist.  There is a possibility I'll have to do radiation, and a small possibility I'll have to do it at Mayo.  That would mean 6 weeks at Mayo, coming home on the weekends.  If I do have to have it, I'm hoping it can be at Hall- Perrine or at least at the University.  I'm looking forward to getting some answers and getting surgery nailed down.

I feel like I am in the eye of the hurricane.  Things are calm right now, but soon the storm will start raging again.  Even now, I'm dealing with lots of pain all the time.  My pain patch doesn't even seem to touch it.  I'm not sure what's going on, but I don't like it much.  I'll mention it at Mayo and see what they say.

Thanks for sticking with me through the storm!

Tuesday, February 17, 2015

Back to School

I started back to school full time yesterday.  It was really good to be back.  It's great to have my classroom back and I'm very much enjoying getting back to my curriculum.  I just about have my grade book all caught up, which is good seeing as next week is the end of 3rd quarter.  I can hardly believe it!

Last night Darrin and I got to go see Alton Brown Live.  Some friends of ours bought tickets, but then they moved out of town and couldn't use them, so they passed them to us.  And these weren't just any tickets- these were the meet and greet, 2nd row tickets!  We've never watched Alton Brown's show, Good Eats, but we think we will now!  ( he is a celebrity chef).  He was very friendly when we met him and he signed some things for us.  The show was absolutely hilarious.  I think I smiled for the whole two and a half hours.  He is a masterful storyteller and had us hanging on every hilarious word.  It was exactly what I needed after such a hard weekend.  God is so good.  He had that little respite planned out for us from the very beginning.  He knew we would need to laugh and have time together.  It was perfect.

The rest of the week is very quiet.  I think this is the first week in 7 months that I do not have ANY appointments.   I am really excited about that. :)  Starting next week they pick up again, so I am going to savor this week.  It feels like an oasis in the midst of our desert.  We are filling back up so we can face what is coming.  :) Go, Team Robin!!

Saturday, February 14, 2015

A Little Perspective

Last night I cried and cried and cried.  I sat in front of the tv from about 6 until 10:30.  The Charlie Brown Valentine Specials were on.  That provided some good distraction.  I did sleep really well, and we had a really nice family day today, so tonight I have a little perspective.

Here is what we learned.  I will go back to Mayo on Feb.25 to meet with a radiation oncologist.  He will decide if I need radiation on my lymph nodes.  Apparently, there is an 80% chance that the chemo did not kill any cancer cells that might be lurking in the lymph nodes.  If the Dr. decides I need radiation, it will happen between two surgeries.  The first surgery is scheduled for Monday, March 16th.  That will be the mastectomy.  The plastic surgeon will then place expanders under the skin and above the muscle.  If he is unable to do it this way because the skin is not healthy or thick enough, then he will put the expanders under the muscle. Doing it this way I think will make the DIEP procedure either harder or impossible.

I will be in the hospital overnight.  If I have to have radiation, it will take place after I have healed from this surgery.  Having the BRCA-1 gene means they can't radiate breast tissue, but they can radiate lymph nodes with no risk.  If I do radiation, I should be able to do it here at Hall-Perrine.  Hopefully they won't want me to do it up at Mayo.  It is 6 weeks, everyday.

If I have radiation, they want to wait 6-9 months before finishing reconstruction.  That news was a huge bummer.  Please pray that radiation will not be necessary.  I definitely want to do whatever I need to to keep the cancer from returning, but I really would love to skip the radiation part. :)

If I don't have radiation, we can do the rest of the reconstruction on a much quicker time frame.  A lot of things also depend on the pathology of the breast tissue when they remove it.  A pathologist will examine it during surgery to make sure the Dr. doesn't need to remove more lymph nodes, and he will also examine it much more closely after surgery.

Sometime between these surgeries I will have a hysterectomy.  I will hopefully be able to do that here in town with my gynecologist.  We haven't even started talking about that.

Other things that are upsetting- I will lose all feeling from under my arms and all the way across my chest.  I can't really even imagine that.  I will have several drains to deal with for at least a week, probably two, at home.  They told me sleeping will be very difficult and uncomfortable.  The biggest bummer- it looks like we still have about a year to go before we are done with this.  Who would have imagined that such a little thing- a 2 cm tumor- could cause so much anguish?

There are also some good things.  I will be back at school full time starting Monday.  I can't wait to get back to all my classes.  I really miss my kids. My surgery is one week before spring break, so I have plenty of time to recover without missing too much more school.  They want me up and around and doing things.  I just can't lift anything over 10 pounds.

I think that basically covers everything.  Feel free to ask if you want to know more.  I am still absolutely devastated about losing my wedding ring.  It was very inexpensive, so at least we didn't lose a huge investment.  But I really, really loved my little ring.   Losing it on top of all the bad, unexpected, and confusing news made Friday really awful.  But, as my dear, wise Father reminded me, every day is a good day, just some are better than others.  That is true, because we have a Heavenly Father who loves us more than we could possibly imagine and He is taking care of us always.  He can handle my tears and understands my grief.  He is already there, and he is bringing me along according to His plan and His timing.  Praise Him for that assurance!

Friday, February 13, 2015

Mayo part two

Today we had four appointments.  I am so disappointed.  Basically I am looking at at least three major surgeries and some out patient procedures, as well.  There is also the possibility of radiation back on the table,too.  I didn't hear any more about my mammograms/ultrasound.  I cannot even talk about how awful I feel about the whole thing.  And to top it all off, I lost my wedding ring.  I will write more when I can do it without crying.

Thursday, February 12, 2015

First day at Mayo

We started out today with a 9:30 visit with a general internal medicine doctor named Dr. Ghosh. She was very nice. We talked a lot about my medical history in general and my cancer treatment specifically. She agreed with our surgery desires and started trying to set up appointments,   First for a mammogram, and then with the surgeon and plastic surgeon.  I got an appointment for a mammogram at 2:00 today. Then both Dr. Ghosh and her scheduler were amazed that they managed to get both surgeons scheduled for tomorrow. I had to laugh a little because of course it was not surprising to have things fall in place.  Too many of you are praying!

I went for my mammogram at two and ended up with a bit of a surprise.  The short version is that there might be some cancer in my left breast. The radiologist can't be sure until he compares the mammogram and ultrasound to ones I had done last May, and then does a biopsy.  Of course, having my surgery will take care of it, but if it is cancer,  there will probably have to be additional treatment. How about we all pray it isn't cancer?!

So, that sums up day one.  Keep praying and I'll keep you posted!

Dumb ipad

My iPad is acting up.  That is code for 'I don't really know what I am doing.'  :)  Anyway, it is now 4:05 am and I just accidentally woke up Darrin while muttering imprecations at my iPad, so I should probably try to get some sleep.  This post will show up before my actual post about arriving at Mayo, so if you are reading this, please go to the next entry to get the real information.  I am so thankful for technology, except when it is smarter than me!

Arrived at Mayo

We left around four fifteen this afternoon for Mayo.  It is amazing how much stuff we brought for possibly just a one night stay.i wanted several comfort items,  so we brought my purple prayer shawl and my zebra blanket, both given to me by dear friends who had prayed over each of them. Wrapping up in them makes me feel like I am wrapping up in God's love and peace, and helps me remember how many people are praying for me.

The ride up was uneventful until we got to northern Iowa, where the wind whipped up and sent the snow blowing across the road like crazy.  It was really beautiful in the headlights of oncoming cars, but also a bit scary. We made it to the hotel about 8:15, only ten or fifteen minutes ahead of my parents.  I realized just before we left that I had forgotten to do all the paperwork they sent me, so I spent about 45 minutes doing that.  They need to know everything, so it was nice to my folks around to help with family history.  On a quick side note, my mom had the genetic testing done a week or so ago to see if she is the BRCA-1 carrier.  Please pray that it will be my dad,  instead.  If it is Mom, she will have to have some surgery, too.  Not as extensive as mine, probably, but no surgery is fun.  If it is my dad who is the carrier, he won't have to do anything.

It was hard to leave school today not knowing when or if I will be back this semester.  I did get to teach one of my favorite world history lessons today, though, which was a great way to finish.  I taught about the Congress of Vienna, which happened after the Napoleonic wars to try to rebalance power in Europe.  It is not the most interesting topic, so several years ago my mom and I sat and brainstormed ideas to make it interesting and memorable, since balance of power is an important concept even up to current times. We came up with a great activity using Oreos and milk.  Whoever has the most Oreos has the most power,so we work to balance how many Oreos each 'country' has.  It is lots of fun, and at the end the kids get to eat all the Oreos.  Anyway- it was fun to (possibly) end on such a fun note.

I also got to pray (and cry) with several of the staff ladies before I left. The staff has been so amazing through all this. I am so blessed to have such a wonderful work environment.

Now we are here and it is 3:45 in the morning. The bed is comfortable, but it is too quiet and there is too much light.  After my last hospital stay we talked about getting a nice sleeping mask because it is so bright at night with al the equipment in the room.  We will have to do that before I go in this time.  I am frustrated to be awake, but at least I remembered about the mask.  I am also hungry, which is funny, since I haven't actually felt hungry for weeks. I've been eating mostly because I have to.

Tuesday, February 10, 2015

Back to School

I made the huge decision last week to go back to school part time.  I come in at 12:30, have two study halls, then teach world history, then have another study hall. Not too strenuous, to say the least. :)  But it is great to be with the kids again, and it's given me time to work on speech stuff and help make sure my wonderful sub is staying on track time wise.  This is very important in world history.  8,000 years of history in 36 weeks!

Our Large Group speech season is over.  Our kids did a great job at state, and we are very, very proud of them.  They had very little time to practice with our weird schedule and snow days.  It was such a fun group of kids.  Darrin and I really enjoyed getting to know the newcomers and deepening relationships with the returners.  Contest days wiped me out, but it was nice to have something that is a part of my normal life.

  PBS is going to air a documentary called, 'Cancer- the Emperor of all maladies.'  I really want to watch it.  Cancer is so unlike any other disease.  It strips you  bare of everything- literally.  There are more side effects that I haven't even talked about on the blog- Things that aren't fit for mixed readership. :)  It took from me everything I found enjoyable.  Everything.  Slowly, some of those effects are lessening.  Food finally tastes mostly normal.  I can stay awake through a movie now (mostly!), my ability to type is much better, I'm starting to grow hair back. (Right now I look like a punk from the 90's.  I just need the heavy makeup and black, ripped up clothes)  :)  I put on earrings and a necklace today for the first time in months.  Some of the other effects could linger on for a year or more.  Many people say they never fully get their energy back.  But I've been feeling pretty good for the last week or so.

However, the last couple of days have been really hard.  Sunday night I was up until 2 crying. So why all the tears?  Because I am finally feeling better, and I know I have to have major surgery that will hurtle me back into the world of pain and incapacity.  I HATE that.  I just want to feel good and be with my family.  I'm ready to be done with this.  We'll head up to Mayo tomorrow afternoon (Wed) and my appointment is at  9:30 on Thursday morning in the breast diagnostic center.  From there, everything is up in the air.

We've been trying to do extra special things with the kids.  My date with Andy was super fun. Last Friday night, we went out to a new wings place in town and to the cheap seats to see Big Hero Six.  It was so much fun for all of us to be able to do that together.  We've been watching more of our favorite shows together, too.  Sunday evening Andy and I played Atari for about an hour.  Today is Andy's 16th birthday, so we're celebrating tonight and I am taking him right after school to get his license.  I'm focusing on the good and the fun to fight back the anxiety of the unknown.  But it is not unknown to the LORD- he's got it all covered.  I have to keep reminding myself of that.  I'm working on the whole "Be not afraid"  thing.  Sometimes it works, and sometimes I struggle.  That's when we fall back on God's grace and perfect plan.  He's already there, taking care of everything.  A comforting thought, isn't it?

Monday, February 2, 2015

Getting Better

I can tell you all have been praying for me.  I am doing much, much better.  I have been able to wake up most days and have a productive day.  A productive day for me right now means getting one or two tasks done, but I'll take it!  I did sleep until 2 today, though.  I needed a day to recharge, and this snow day was perfect for it.

I am going back to school this week part time- just in the afternoons.  I'll have 2 study halls and my world history class, which is my favorite class to teach.  It's kind of silly to just go back for 6 days, but I need to do something to keep me occupied and not focused on the trip to Mayo.

I decided that before our trip, I wanted to take each boy out on a date. They got to choose what to do, and there were no limits. ( I could do that because I knew they wouldn't want to do anything terribly expensive- they have relatively simple tastes.)  Shiloh and I went to see the third Night at the Museum movie, went to McDonald's for supper, and then went to Walmart to look at Lego, since he had a gift card.  He didn't find anything he wanted, so we went home and he ordered a set online.  It was a very fun evening.  Luke and I went to see Interstellar, which is a FANTASTIC film.  I highly recommend it- spiritual themes all over the place.  Then we went to Chick-fil-a for supper and headed home to watch Agent Carter on TV.  Andy and I are going tomorrow.  We're going to rent The Hundred Foot Journey and then go to Red Robin for supper.  They are all so much fun to hang out with, and so very different.  It has been so fun over the years to watch their personalities develop.  They have been  wonderful through this whole cancer journey.  They take excellent care of me when I need help. I couldn't ask for better kids.

It has been so great to feel more like me again.  Please keep praying.  Anytime I start to think about Mayo and these surgeries I start to feel overwhelmed again.  I just keep reminding myself that God is already there.  He's on the other side of the surgeries and knows exactly how they are going to go.  He also is right here beside me helping me through every day.  That amazes me about God.  He is everywhere and everyWHEN all at the same time.  And he is intimately interested in all the wheres and whens.  For all you Doctor Who fans- He is the ultimate Time Lord. :)  Our God cares about every detail in our lives- nothing is too small to take to Him in prayer.  I am so awed and humbled by that truth.

I've seen the Lord do a couple of undeniable miracles in some friends' lives over the last few weeks, after years of praying.  His timing is perfect and wonderful.  I am so privileged to be part of His family, and I know my cancer is part of his plan to bring glory to Himself.  I still hate it, but that knowledge does make it easier.  As do all your prayers and notes!!  Let's praise the LORD for his goodness, TEAM ROBIN!